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The Search for an Alzheimer's Cure in an Age of Misinformation

It's so easy to get caught up in health fads. You can find innumerable people who seem knowledgeable online, who are marketing their own solutions to cure or prevent some of the world's most dreaded diseases. Alzheimer's disease is one of the most feared diseases, and, of course, everyone is hoping for a cure. When people advertise their own unproven solutions, they've got an easy market by preying on everyone's hopes and fears.

You may hear this type of talk from supplement companies and other sources who present cure-all solutions. The FDA suggests that you bear in mind, "If it seems too good to be true, it probably is". It's important to use a discerning eye when you learn about a new "cure" to a disease like Alzheimer's. Look up studies that both support and contradict the finding. How big are the studies? Are the studies submitted to respected peer-reviewed journals or to journals with little oversight that ask you to pay a high fee for publication? (For a list of predatory open-access journals, look at Beall's list

A few years ago, there was a movement online about the potential of coconut oil as it relates to Alzheimer's disease. At the time, I was working in a nursing home for people with Alzheimer's. Understandably, many family members of the residents were interested in trying anything to stop or reverse their loved one's cognitive decline. I know at least one family member requested that the doctor add coconut oil to their spouse's medication regimen. 

If you want to try one of these types of treatments, it's important to weigh the benefits and risks to your loved one's quality of life. Is trying a yet-unproven treatment worth putting your loved one through the side effects and, in this case, gastrointestinal discomfort that can be associated with increased coconut oil intake? Would they consent to this? (For more information, read the coconut oil portion of this literature review, located at 5.2.2) Each person will have a different answer since we all are different. The important thing is to consider the individual it will be affecting. 

Right now, the scientific consensus is that Alzheimer's disease is not reversible, and since there is no one cause, unfortunately, there is no current treatment to prevent or cure it. There are FDA-approved medications for Alzheimer's disease, which are used to slow the progression of cognitive decline. However, these do not cure the disease either. 

So, what can we do? 

  1. Take care of your heart and your brain. Heart health and brain health are very closely related, and new research indicates that the vascular system may impact Alzheimer's disease. The general advice for reducing your risk of developing Alzheimer's is to remember that heart-healthy choices are also brain-healthy choices. You'll often hear recommendations to cease smoking, eat well (often a Mediterannean diet is recommended), exercise, and sleep enough. Staying social and physically protecting your brain (by avoiding concussions) can also reduce some risk. 
  2. You could take part in clinical trials to help develop new treatments. Companies are struggling to find people with Alzheimer's to take part, so increased participation is needed to help push scientific research forward. Here's a national list of clinical trials for Alzheimer's disease (click on your state for the list of trials near you) National List of Clinical Trials, and here's a link to the newest Eli Lilly pharmaceutical clinical trial: Eli Lilly Clinical Trial 
  3. If you hear of a new cure or solution to Alzheimer's disease, approach it with a skeptical eye. Do your research. Talk to your doctor. If you want to try it, weigh the risks and benefits on your quality of life. If it's for a loved one, would they consent to trying this new approach if they were aware of the risks and possible, yet unproven, benefits? Involve them in the decision.

An Alzheimer's diagnosis is devastating. It makes sense that you'd want to try whatever you can to prevent or reverse it. However, guarding yourself against misinformation and arming yourself with knowledge will help move the fight against Alzheimer's forward. 

Posted by Grace Townley-Lott, LMSW in Alzheimer's & Dementia

Written by Grace Townley-Lott, LMSW Grace Townley-Lott, LMSW

Grace Townley-Lott, LMSW is the Director of the True Bridge program at True Care, which provides additional support for those with memory loss. True Bridge provides strengths-based care to empower, encourage, and engage our clients. With almost 15 years of experience working specifically with clients with dementia-related conditions and their families, she enjoys building connections and opportunities for expression through creative engagement. After work, you can find Grace reading, writing, painting, or creating artistic specialty cakes.